Sorry that it has been a little bit since our last entry.. We have been a little busy with the new year and spending time with family
*** WARNING this is a long one***
So a little summary of our past few days.. Let’s start with Friday the 30th.. Evan had a checkup at UW with his Doctor, Dr. Schweizer. Long story short, he is happy with how things are going so far in regards to the diminished pain and no longer hacking up any blood! Hopefully that means the cancer is shrinking!! To confirm this, they will redo some blood work/scans/etc.but according to their protocol, they don’t do this right away which bugs me…lol but with cost, exposure to radiation, and being that only 1 round is complete so far, it makes sense. However, how Evans body is responding (no pain, coughing up blood) is very positive and hopeful!! The only concern the doctor had was about his absolute neutrophil count (ANC) which is a type of white blood cell in the body that helps fight infection. With chemo, this is a common. His blood work showed that his ANC was .5 and the normal range is 1.5to 8.0. So he put him on an antibiotic to help boost his immune system and as a preventative.
The doctor also gave us the biopsy results which revealed what kind of testicular cancer this actually is. We were expecting 1 but there is actually 2. He indicated this isn’t abnormal and that it is actually common to have more than one kind. Both are considered germ cell tumors. The one is called choriocarcinoma and the other is embryonal carcinoma. Both are a type of non-seminoma germ cell tumors.
American Cancer Society had some brief info on these types of cancer so I used my nursing school research skills to explain them a little cause I myself didn’t know what these crazy words mean and here’s the website: http://www.cancer.org/cancer/testicularcancer/detailedguide/testicular-cancer-what-is-testicular-can…
“Most tumors are a mix of different types (sometimes with a seminoma component as well), but this doesn’t change the general approach to treatment of most non-seminoma cancers.
Embryonal carcinoma:This type of non-seminoma is present to some degree in about 40% of testiculartumors, but pure embryonal carcinomas occur only 3% to 4% of the time. Whenseen under a microscope, these tumors can look like tissues of very earlyembryos. This type of non-seminoma tends to grow rapidly and spread outside thetesticle.
Embryonal carcinomacan increase blood levels of a tumor marker protein called alpha-fetoprotein(AFP), as well as human chorionic gonadotropin (HCG).
Choriocarcinoma: Thisis a very rare and aggressive type of testicular cancer in adults. Pure choriocarcinomais likely to spread rapidly to distant organs of the body, including the lungs,bones, and brain. More often, choriocarcinoma cells are present with othertypes of non-seminoma cells in a mixed germ cell tumor. These mixed tumors tendto have a somewhat better outlook than pure choriocarcinomas, although thepresence of choriocarcinoma is always a worrisome finding.
This type of tumorincreases blood levels of HCG (human chorionic gonadotropin)”.
ANYWAYS Friday after the appointment we made plans with Salina because she kindly offered to take some engagement photos of us! She took them right before the sun went down at Gas Works Park! It was freezing but we had fun and now have some of our favorite pictures that we can’t wait to get printed!!! Thanks again Salina:) The next day, Evans Grandma, Grandpa, Aunt and Uncle from Oregon came to visit! We spent New Year’s Eve day with them and enjoyed just being able to hang out together and watch some football! New Year’s Eve night we went to our friends Nick and Salina’s, who live right next to Lake Union, so they had the perfect roof top view to watch the fireworks at the Space Needle. They also have a fur baby named Bubba who Rollo LOVES to play with so it worked out great.
The next day, back at Evans parents, we all participated in Heather and Reichie’s Fondue lunch that they do every New Year’s Day! Evan couldn’t get enough of the cheese and bread, of course..lol When we got home that night, we had dinner at our place with the Matz family and my family!Monday was a cleaning day for me, being that I started school again on Tuesday!However, Evan watched football ALL day. Which was a win, win situation for us..haha because usually when I clean the house someone leaves a mess where I already cleaned… so not this time 😉
While being at home, Evan has been able to take Rollo out for walks regularly and eat normally! He really has been doing great while at home. He hasn’t taken any pain med and is able to sleep comfortably all nightlong!
Yesterday, Kyle brought Evan up to UW around 1230pm, where they met up with his parents and checked in for his second round of chemo! They did more blood work to check his levels again, did an X-ray to make sure his PICC line (aka where the chemo goes in) was in the correct placement, and the pharmacist took forever to make his chemo. (Chemo is so expensive that they make it every time it is needed, they never have premade bags) So his chemo did not start until like 9pm and ended at like 3am but luckily it just runs into his PICC line. So he was able to sleep and receive chemo at the same time AND Kaylee brought him a Dick’s burger and fries so we was content to say the least. He slept all night and woke up with a big appetite. He had chips, cereal, crackers, a bagel,apple juice and has subway on the way. He wasn’t happy to be back here and he has expressed that it scares him, however he is happy that the cancer is being killed!!! We all are and I keep telling him every day to stay positive and that we are going to get through this! And just like his buddy Nick said, “You have nothing to be scared of. I know it’s painful but in the end you’re going to be better.”
So day one of five is complete and he’s ready for the next!He is VERY determined to go home Monday and he’s not letting anyone forget that.. lol I hope I covered everything and I hope everything makes sense lol I usually have someone proof read my stuff but Evan is currently sleeping so excuse errors etc. Also, I may be in nursing school but I don’t know everything so hopefully my information is correct lol I have been told my knowledge will come with time… lol
Also Maddie and Garrett got back to LA safely yesterday and we miss them already! Thanks for hanging out with us! xoxo
Oh and thanks dad for driving me up here last night, you’re the best!
Don’t forget to save the date on February 11th 2017 for Evans Benefit dinner! All are welcome and the more the merrier! We will have more information to follow soon!